It's a disease that requires constant attention and one that has no cure. But two Menomonie kids are working to help find one.
Max and Sophie Voss are 11 and 14. Both have Type 1 Diabetes. On Thursday, they and their parents are jetting off to Washington, D.C. to tell lawmakers just how important it is to find a cure for their disease.
They are your average talented, busy kids, but unlike the majority of kids in the U.S., Max and Sophie Voss are constantly testing their blood, counting carbohydrates and taking Insulin.
"I enjoy playing basketball, dancing, girl scouts, playing with my brother, playing piano," Sophie said.
"You have to constantly think about diabetes because if you don't think about it you'll die. You have to be constantly aware of where it is and then correct it right away when you're high or low," Max explained.
Max was diagnosed with Type 1 Diabetes when he was 4 years old. His younger sister Sophie's diagnosis came just four years ago at age 8.
"Having Type 1 Diabetes makes your life a little more difficult because when you wake up you have to immediately check your blood pressure and before every meal or snack and every time you eat," Sophie said.
"It’s a constant battle 24 hours a day to make sure they're safe, worrying about them, making sure their blood sugars are in good range. You know stress and anxiety can also alter the blood sugars so it's constant worrying of are they ok?" Max and Sophie’s mom Jennifer Voss said.
It's a disease they and their parents battle 24 hours a day, seven days a week.
"If they go to bed at 300, with a blood sugar around there it's up to us to correct their Insulin through the night to bring them into the morning so they wake up pretty much in a normal range," Max and Sophie’s dad David Voss explained.
On Thursday, Max and Sophie are heading to Washington, D.C. to advocate for diabetes research so someday their disease can be cured.
"I really hope that we can get more funding for Type 1 Diabetes because it would be really nice if there is a cure so no one would have to live with this anymore," Max said.
Max and Sophie were among 150 children throughout the U.S. chosen to represent their state. They’re delegates in the Juvenile Diabetes Research Foundation's Children's Congress. The two had to write essay’s in order to be picked to go to Capitol Hill.
According to JDRF, as many as three million Americans have Type 1 Diabetes. It says each year, more than 15,000 children and 15,000 adults, about 80 per day, are diagnosed with Type 1 Diabetes in the United States.
For more information on JDRF: clickhere